Research Participants
Deciding to Participate in Research
Participants are encouraged to review this information thoroughly, ask questions, and take the time needed to make an informed decision about their participation in the research. We inspire you to contact us at info@whatsanirb.org for any questions or concerns you may have concerning your participation as a current or potential research participant.
Informed Consent
The informed consent process involves providing you with detailed information about the research, including its purpose, procedures', potential risks, and benefits. You should have the opportunity to ask questions and ensure you understand before deciding to participate.
Risk & Benefit
While every effort should be made to minimize risks, it's important to know the potential risks and benefits. In some cases, there may not be direct benefit to you to participate in research, but will contribute to the increase of knowledge for the purpose of the research.
Confidentiality & Privacy
Your personal information should be treated with the utmost confidentiality. As part of the informed consent process, specific measures on how your data will be kept private and confidential should be shared with you. Your privacy should be a top priority throughout the study.
Compensation & Cost
In some research studies, participants may be offered compensation to help offset costs when participating in research. This may be in the form of parking vouchers, transportation fees, etc. In addition, information on what the cost to you to participant should be shared with you as well.
Purpose of the Research
The primary goal of the research should be shared with you.
Voluntary Participation
Your participation is entirely voluntary, and you can withdraw your participation at any time without consequence. If you decide to leave, it should not affect your current or future care.
Study Procedures'
The study procedures you will be required to participate in should be explained to you in detail, including the time you will have to be available for the procedures. Usually this is answered to What will happen to me in this research?
Contact Information
You will be provided with the study team contacts to be able to call if you have any questions or concerns. In some clinical research studies, you may be provided with a research card to be able to present to medical personnel in the event you have to get care outside of the research.
Alternative Options
Prior to participating, you should be aware of any alternative options you have from participating in the research and we encourage you to discuss this with the research team.